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THE mum of a three-year-old girl from North Yorkshire with an extremely rare congenital disorder is fighting to raise awareness of the condition.

Sadie Stephenson, 32, lives in Thirsk with husband, Nathan, 32, and children, Florence, three and two-year-old Archer.

She began her career in advertising at The Press in York, before moving into marketing and on Sunday (April 14) she's running her first marathon - the Adidas Manchester Marathon - to raise money for the Williams Syndrome Foundation.

The foundation helps children and adults with Williams Syndrome, a disability and a rare genetic disorder which affects Florence.

At just six weeks old the doctor discovered that Florence had a heart murmur and further investigations discovered she had three different heart conditions.

 

YOU’LL FIND MORE ON THIS STORY AND OTHERS AT www.yorkpress.co.uk OR PICK UP YOUR COPY OF THE NEWSPAPER ITSELF AVAILABLE SIX DAYS A WEEK AT YOUR LOCAL NEWSAGENT

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